Delivering personalized care to women with vulvodynia: The integration of an electronic patient assessment questionnaire into the clinical setting.
The purposes of this research study are 1) to create a patient registry for women with chronic vulvar pain; 2) to evaluate the clinical utility of a newly validated tool, the Vulvar Pain Assessment Questionnaire (VPAQ). The data registry for the BC Centre for Vulvar Health is being created to collect clinical and questionnaire data from patients referred to the BC Centre for Vulvar Health on an ongoing basis. This will allow the Centre to follow women’s treatment progress and help to determine whether and how patients improve after being seen at the clinic. If you are interested in participating, please contact Bobo Tong.
The Development of a Core Outcome Set for Vulvar Intra-epithelial Neoplasia; a Delphi Study with Engagement of Both Health Care Professionals and Patients.
The objective of this study are to systematically evaluate the literature regarding treatment outcomes for vulvar intra-epithelial neoplasia. Specifically to develop, disseminate and implement a (1) multidimensional patient data set (demographic, clinical, biological characteristics) and, (2) a VIN core outcome set (COS).